Preparing for a simple hand surgery with Ehlers-Danlos Syndrome is an elaborate production involving several specialists, countless hours on the phone, explaining then re-explaining several issues, allergies, nausea, time of surgery in coordination with food and medication, what medications that can be taken before surgery and then determining what medications you can live without. Spoiler alert, probably not very many. Then there are the cardiovascular implications of general anesthesia that needs to be cleared with a cardiologist, kidney disease limitations cleared by a nephrologist resulting from several kidney stones passed in the last few years, a story for another day. And, lastly, lengthy conversations with the doctor performing the surgery.
Two big anxiety-reducing blessings here thankfully, the first, my surgeon is not only familiar with EDS, but he has also actually performed hand surgery on EDS patients before. Second, the surgery is at Riley Children’s Hospital. Put simply, Riley. Is. Home. its where I was admitted for the first time and where I have spent 7 of the last 8 ER visits, but that’s also a story for another day. If you have ever been to Riley and spent time there, you will know how much that place exudes warmth and compassionate care. At least I have the peace of mind knowing if anything goes wrong, I’m 100% where I need to be to get the best care with my own physicians.
The goal is to complete the whole hand surgery, removal of a cyst on my finger, and two steroid injections, without needing general anesthesia. With my next major concern being that the local anesthetic doesn’t wear off too quickly, another common EDS occurrence. Similarly, I only used local anesthesia when getting my wisdom teeth out, the dentist said it was the first time he talked to someone while he was removing their wisdom teeth. Anyhoozle, if you see this post before 5/14 at 5PM EST, say an extra prayer for me that everything goes well. I’ll be sure to let everyone know how things go.
P.S. This is an unplanned post, not part of the previously mentioned library, I just wanted to share what was going on and some of my brain contents before surgery.
See you next time,
ManOfZebra 🦓
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