I’m working on some new long-form content to accompany some of the larger posts going up on Instagram, keep watch there and on my blog for more! An absolutely insane amount of changes, progression, treatments and more have been tried, failed, replaced since my last post on here, my goal is to get you caught…
Preparing for a simple hand surgery with Ehlers-Danlos Syndrome is an elaborate production involving several specialists, countless hours on the phone, explaining then re-explaining several issues, allergies, nausea, time of surgery in coordination with food and medication, what medications that can be taken before surgery and then determining what medications you can live without. Spoiler…
Man of Zebra, a cute name, but what exactly is a zebra?*raises hand* an animal with stripes. Well yeah, but not quite. If you are new to the spoonie community welcome, there are plenty of… nope actually fresh out of spoons. When dealing with complex health issues, diagnosis is always a crucial part of organized…